About this event

  • Date and time Tue 12 Nov 2024 from 8:45am to 5:00pm
  • Location Royal Society of Medicine
  • Organised by Paediatrics and Child Health

This event has long been a regular fixture in the annual calendar of healthcare professionals working in the field of cystic fibrosis, and offers the rare and exciting opportunity for the UK CF community to gather in person, here in the UK, for an educational and networking meeting

Its purpose is to provide an overview of developments in CF care over the past 12 months, with particular focus on areas where there is new research or a high level of clinical interest.  It also aims to provide an opportunity for the “next generation” of CF clinicians to present cases and gain experience and education. 

By attending, you will:

  • Learn about recent advances in the understanding of, and management of, several aspects of cystic fibrosis including:

    • Lung disease

    • Liver disease

    • Diabetes
  • Understand the current state of gene therapy for cystic fibrosis
  • Hear a broad overview of the challenges faced by individuals with cystic fibrosis as they grow older
  • Gain additional learning in different aspects of caring for people with CF through the “year in review” and “fellows rounds” sessions

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We would like to thank our sponsors Nordic Pharma and Vertex Pharmaceuticals for their financial support of this event. Please note that the main scientific programme and content has not been influenced in any way by the sponsors. 

Agenda

View the programme

Registration, tea and coffee
Welcome and introduction

Dr Rishi Pabary and Dr Anna Shawcross

Cystic Fibrosis diabetes

The Physiology of CFRD and implication for treatments

Presenting virtually: Dr Scott Blackman, Associate Professor of Paediatrics, Johns Hopkins University School of Medicine

The role of nutrition and education in the management of CFRD

Hannah Winterbottom, Specialist Dietitian and Sam Punt, CF diabetes specialist nurse, Manchester Adult Cystic Fibrosis Centre

The use of Type 2 diabetes medications to treat CF diabetes

Dr Amanda Brennan, Consultant, Manchester Adult Cystic Fibrosis Centre 

The role of technology in managing CF diabetes

Francine Lewis, CF diabetes specialist nurse, Manchester Adult Cystic Fibrosis Centre 

Tea and coffee break
New perspectives in CF liver disease

Dr Deepak Joshi, Consultant Hepatologist and Honorary Reader in Hepatology, Kings College Hospital, London 

Gene therapy for cystic fibrosis

Professor Uta Griesenbach, Imperial College, London and Professor Jane Davies, Imperial College, London

Lunch

Progess and potential pitfalls: Where are we now with CF lung disease?

Dr Anna Shawcross and Chris Short, Research Physiologist, Royal Brompton Hospital and Imperial College London

Challenges for an ageing cystic fibrosis population

Dr Dilip Nazareth, Respiratory consultant, Liverpool Heart and Chest Hospital NHS Foundation Trust 

Dr Jamie Duckers, Respiratory consultant, Cardiff and Vale University Health Board 

Dr Freddy Frost, Respiratory consultant, Liverpool Heart and Chest Hospital NHS Foundation Trust

Ms Jo Snowball, Cystic Fibrosis Dietitian, Oxford 

Tea and coffee break
Fellow's round
‘A life on the line’ – a case of a near-fatal portacath complication. Is it time to rethink implantable venous access devices in CF?

Shweta Agrawal, Internal Medicine Trainee (IMT3), King's College Hospital NHS Foundation Trust

 

A severe case of diarrhoea: Pseudomembranous colitis in a pre-school child with cystic fibrosis

Zoë Bothamley, Paediatric Speciality Trainee Year 4, University Hospital Lewisham

 

Atypical vertebral Mycobacterium chimaera infection in a lung transplant recipient a case report of pre-transplant positivity and post-transplant manifestation

Zainab Arif, Internal Medicine Trainee (IMT3), Frimley Park Hospital

Overlooked and oversaw: A late cf diagnosis should not be ignored

Hannah Karimzadeh, Respiratory Registrar, Liverpool Heart and Chest Hospital

The year in review

Dr Maya Desai, Consultant Respiratory Paediatrician, Birmingham Children’s Hospital 

Closing remarks

Dr Rishi Pabary and Dr Anna Shawcross

Close of meeting

Sponsors

Location

Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom

Registration for this event will close at 1:00am on Monday 11 November 2024. Late registrations will not be accepted.

The agenda is subject to change at any time

If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenter’s and RSM’s discretion.

All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations.