Medicine and Me: Living our best life - examining innovations to deliver optimal care for people with genetic bleeding disorders

Explore future care and treatment for people with a genetic bleeding disorder at this interactive event, run in collaboration with the Haemophilia Society.

Knowledge of genetic bleeding disorders, such as haemophilia and von Willebrand disorder (VWD), has increased dramatically in the last few decades, resulting in big breakthroughs in treatment and care. Today, with gene therapy available on the NHS and safe, effective treatment accessible to most people with a bleeding disorder in the UK, the poor quality of life and low life expectancy once experienced by those affected are a thing of the past, and new technologies underpinned by increasingly sophisticated research and data hold promise for further life-changing developments ahead.

Join us in person to hear from people with lived experience of a bleeding disorder as well as leading experts in the care and treatment of haemophilia, VWD and other rare disorders as they discuss current best practice, what future care will look like, and how best we meet the needs of the bleeding disorder community.

By attending this meeting, you will:

• Learn about current best practice, clinical networks and latest treatment advances.
• Share experiences and provide feedback on what matters most to you living with a bleeding disorder.
• Meet leading haematologists, scientists, and the Haemophilia Society team to gain insights into national care delivery and the charity's work.
• Connect with others living with genetic bleeding disorders.