Explore future care and treatment for people with a genetic bleeding disorder at this interactive event, run in collaboration with the Haemophilia Society.
Knowledge of genetic bleeding disorders, such as haemophilia and von Willebrand disorder (VWD), has increased dramatically in the last few decades, resulting in big breakthroughs in treatment and care. Today, with gene therapy available on the NHS and safe, effective treatment accessible to most people with a bleeding disorder in the UK, the poor quality of life and low life expectancy once experienced by those affected are a thing of the past, and new technologies underpinned by increasingly sophisticated research and data hold promise for further life-changing developments ahead.
Join us in person to hear from people with lived experience of a bleeding disorder as well as leading experts in the care and treatment of haemophilia, VWD and other rare disorders as they discuss current best practice, what future care will look like, and how best we meet the needs of the bleeding disorder community.
By attending this meeting, you will:
Standard pricing available until 26 February 2025.
| RSM Student | RSM Associate | RSM Fellow | RSM Retired Fellow | RSM Trainee |
|---|---|---|---|---|
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 |
| Consultant / GP / SAS Doctors | AHP / Nurse / Midwife | Non Healthcare Professional | Patient / Carer / Relative | Student | Trainee |
|---|---|---|---|---|---|
| £0.00 | £0.00 | £0.00 | £0.00 | £0.00 | £0.00 |
Ms Nicola Curry
Chair: Mr Clive Smith, President, Haemophilia Society
Discussants: Mr William Horsley, Lead Commissioner for Specialised Blood Disorders, NHS England, Ms Nicola Curry and Dr Mary Mathias, Consultant Haematologist, Great Ormond Street Hospital for Children NHS Foundation Trust
Dr Charles Percy, Consultant Haematologist, Queen Elizabeth Hospital
Chair: Mr Clive Smith
Discussants: Mr William Horsley, Ms Claire Lentaigne, Dr Susie Shapiro, Associate Professor of Haematology, Consultant Haematologist, Oxford University Hospitals NHS Foundation Trust, Dr Charles Percy
Dr Susie Shapiro and Dr Mary Mathias
Chair: Mr Clive Smith
Discussants: Dr Susie Shapiro and Dr Mary Mathias
Royal Society of Medicine, 1 Wimpole St, Marylebone, London, W1G 0AE, United Kingdom
Registration for this event will close at 1:00am on Wednesday 26 February 2025.
Late registrations will not be accepted.
The agenda is subject to change at any time
If the event is recorded, we are only able to share presentations that we have received permission to share. There is no guarantee that all sessions will be available after the event, this is at the presenter’s and RSM’s discretion.
All views expressed at this event are of the speakers themselves and not of the Royal Society of Medicine, nor the speaker's organisations.
