About this event

  • Date and time Mon 11 Nov 2024 from 5:00pm to 6:15pm
  • Location Online
  • Organised by Medical Genetics

Gain an in-depth understanding of the social and genetic implications for children born within close relative marriage and the role that healthcare professionals can play in supporting their families.

Close relative marriage can confer an increased risk of infant mortality and morbidity, so it’s important that professionals and services offer appropriate support and access to genetic services. Participants at this event will also gain an overview of the national strategy to develop culturally competent genetic services.

This webinar is part of the Medical Genetics, Beyond the Clinic series. 

By attending this meeting, you will:  

  • Enhance your understanding of the prevalence and impact of close relative marriage in the UK. 
  • Develop the skills needed to identify families that could benefit from support. 
  • Know when and how to refer couples who practice close relative marriage to local genetics services.

 

 

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Key speakers

Mrs Nasaim Khan

Clinical Lead Equality, Ethnicity and Genetics, Maternity and Neonatal Programme, NHS England

Speaker's biography

Mrs Nasiam Khan is a Registered Genetic Counsellor, Registered Nurse and Health Visitor with over 30 years’ experience of working in the NHS.  She has worked to improve equity and access to genomic services for consanguineous families since 2005, securing a national clinical leadership role at NHS England in 2021 to implement culturally competent genetics services for consanguineous couples, based on a model she co-developed developed (BMJ Open 2019). 

 

In her national role she directs the national strategy, provides training to healthcare professionals including midwives, doctors and genomic associates. She support areas of high need to implement local strategies to ensure access to culturally competent care. She lead work with national bodies, such as the National Child Mortality Database and NHS Digital. 

 

She ensures that the views of those from ethnic minority groups are heard, often asking the difficult questions to change the system. Her aim is to improve services for groups experiencing health inequalities. 

 

Agenda

View the programme

Welcome and introduction

Dr Shwetha Ramachandrappa, Consultant Clinical Geneticist, Guys and St Thomas NHS Foundation Trust, President, Medical Genetics Section, Royal Society of Medicine 

Culturally competent genetic services and close relative marriage

Mrs Nasaim Khan, Clinical Lead Equality, Ethnicity and Genetics, Maternity and Neonatal Programme, NHS England

Question and answers
Interactive case studies

Dr Shwetha Ramachandrappa and Mrs Nasaim Khan

Close of meeting

Location

Online

 

Registration for this webinar will close 1 hour prior to the start time. You will receive the webinar link 1 hour before the meeting. Late registrations will not be accepted.

Webinar recordings will be available for registered delegates up to 60 days after the live webinar, via Zoom. The link will be sent 24 hours after the webinar takes place.

This webinar will be recorded and stored by the Royal Society of Medicine and may be distributed in future on various internet channels.

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